No one ever said he wouldn't walk.... No one ever said he wouldn't crawl. Most have said, "We don't know." The only thing scarier than the unknown... .... scarier than the not-knowing of how a future will play out... ... how our son's life will unfold.... .... whether he will live a full and purposeful… Continue reading Big Milestone
Category: Family
Niko is almost 1 + 6th infusion
Niko will be 1 next week! Can you believe it!? 26 fractures at birth 13 hours of labor for mom 6 IV infusions 5 days in the NICU 4 prenatal ultrasounds 3 siblings who adore him 2 parents who are beside themselves with his presence 1 big birthday boy + 923 miles to Omaha and… Continue reading Niko is almost 1 + 6th infusion
The Day I Heard God’s Voice
At 7 months pregnant, with a baby boy whose life doctors would not predict, I heard God's voice loud and clear.
Niko grows strong
{New blog} Niko grows strong and continues to show us physical strength and a joyful spirit that is unbreakable!
Niko’s first Christmas already and his first mama’s birthday
Every week we meet with PT and OT, it seems Niko is doing something he hasn't done before... whether it be using his arm just a little more, reaching just a little higher, straightening his legs just a little more... his subtle changes grow until they are just part of the normal. Niko started grabbing… Continue reading Niko’s first Christmas already and his first mama’s birthday
Brave and strong: Niko grows, 3 months and another Pamidronate infusion
Niko's 3rd and 4th months are filled with his first Hallowed, his second Pamidronate treatment and his first Thanksgiving! Although in a whirlwind of moving, kids, holidays, and all things OI, I start to welcome normalcy... our "new" normal.
Worry Less
My future self talks to me all the time and this is what she says: Worry less Read my blog post titled: "How to relieve our worry" In it I quote Dr. Joe Dispenza, who reminds us of this: “The hormones of stress cause us to select the worst-case scenario in some future and begin… Continue reading Worry Less
How my life and belief changed
At 11 years old, I wrote a letter to President Bill Clinton... about why he vetoed a bill that would ban partial birth abortion. Unfortunately I do not have a copy of the letter I wrote to him, but have his response: I had no idea about being a woman or the situation a woman… Continue reading How my life and belief changed
How to get the most out of an argument
My relationships have come a long way since committing to mindfulness. It's not easy, but full of lessons, surprises and raw bliss. "On their 50th wedding anniversary, a couple reflected on their life together, Bishop Malesic said. The husband said to his wife, "I have always wanted to ask you something. From the night we… Continue reading How to get the most out of an argument
Prayers for my daughter
My daughter is growing up. And I am thrilled about it. She is moving through these experiences and I am fumbling alongside her... sometimes ahead of her, sometimes behind her. We know how important we are to our daughters. We know they learn about life through us. And yet, we must surrender this importance and recognize… Continue reading Prayers for my daughter
Diagnosis during pregnancy 