🦴”Google Osteogenesis Imperfecta” he said :: Dr. Saller, our genetics doctor, told us when I was 25 weeks pregnant🧬 Down the yellow brick road he sent us💛 We are never quite sure how we got here and we don’t always know how to get to where we are going... but we know we are guided, and this traveler right here, has me grinning from ear to ear💛 Each if these infusions represents how far we’ve come, how far we will continue to go, and how honored we are to walk the path laid by those who walked before us, beside us and after us💛To strong bones that may carry him wherever he wants to go... although they may be different, they are his. And may God continue to bless them and all others always, and in all ways💛 ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀
#oiawareness #osteogenesisimperfecta #fragilebutstrong #strongbones #oiwarrior #divinetiming #pamidronate #prenataldiagnosis #sacredjourney #celebraterare #makingofamama
PERSPECTIVE 💛⚡️ Just how damn far we have come! From his first infusion at 8 weeks strong to his last infusion before he turns 2!💪🏼 I couldn’t be more proud of this boy, of our life together, and the absolute deepest purpose and joy I ever thought was possible. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀
It’s still shocking to me that treatment was never once mentioned to me when I was pregnant with my son. Every ultrasound, his tiny bones were measured and his life still met with question. Such an intimate focus placed on what he is, rather than what he can become... and that’s what we will do... be with today, because we know it doesn’t end here🌟 Know what is now and know what can become. ⚡️ This medicine has given my son strength for his bones and the ability to grow strong🙏🏻🦴 And a plan for a fierce future🔥
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If someone wrote a manual for life, I certainly didn’t get it... there is no one who defines our road or details our path... and its challenges🌟 It’s exhilarating at best and terrifying at worst...to step into the unknown and forge ahead... but life has our best interest at heart... with her, comes the darkness, but you also always get the light🌟💛 ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀
#osteogenesisimperfecta #pamidronate #bonejuice #nikothegreat #oiawareness #prenataldiagnosis #nursesrock
💐The girls and all the dancers did a fantastic job👏 Thank you to Aunt @mariafennelllachesky Tia @shootinstar11 and Nonni @marielorelliwatson for coming out. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⚡️REFLECTION: A senior dancer performed to All Again by Ella Henderson 🎶, a song about relationship heartbreak... but the confirmation that “I’d do it all again.” In the chaos of the mess, and the expectations, the energies, the wounds, the wisdom, the human ness of putting one foot in front of the either with shoulders full of heavy bags and heavy hearts... there are moments of sunshine, of a warm sense of belonging, of togetherness and connection. To each other, to something greater, and this moment is not just a moment in time.... but a memento of every step we have taken to get here. 🌟 We forget to celebrate this moment, and also to remember just how far we have come.... and that we would do it all again. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀
Sometimes I grieve for the past... as our babies get older, I grieve for a moment I won’t get again. Sometimes I yearn to hold our fragile baby in my arms again... this time, a little wiser, a little stronger, a little more certain... more certain of an outcome and more confident in the moment. Just to snuggle those babies again would bring me such immense joy. If I knew then what I know now, I’d do it all again. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀
This life is not meant to go in reverse, but onward. The good news is we keep growing... and the scary news is, we keep growing🌻 It’s easy to forget how far we have come and it’s worth celebrating 🎉 We mean more than this moment and it’s so easy to forget that as we dive deep into our density. We must remember how far we have come, and that as we grow, expand and blossom, we are never finished, never a representation of a single moment, but always part of a deeper belonging to something more... that took millions of years to get here... and is here to change the world... one moment at a time ✨ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀
#sacredconnection #family #divinerelationships #differentlyabled #divinetiming #osteogenesisimperfecta
Repost @drjoedispenza :: ⚡️When this happens, the brain narrows its focus on whatever is going on and it freezes an image & it takes a snapshot, & that's called a memory. The higher the emotional quotient, the more fear, pain, shock, whatever it is, the more we pay attention to the cause. That is how long term memories are created.
The challenge is, is that every time we think about that trauma, we're producing the same chemistry in the brain & body as if it was happening again. What that does is it activates their survival gene. And when you're in survival, what you want to do is make sure that that doesn't happen again.
So what you start to do unconsciously is you start to begin to forecast what you'll do if it happens again, & you start selecting a worst case scenario in your mind. And then you think, "Well, what if this happens? What if that happens?"
The person is conditioning their brain & body into the past, & in the same time, they're literally bracing themselves for the worst case scenario in their life, because in survival, if you prepare for the worst, there's better chances of survival.
To change you have to start lowering the volume to that emotion. We teach people how to get beyond the analytical mind & into the operating system where those subconscious programs exist, change their brainwaves & begin to make significant changes, when they start those subconscious changes, they're less reactionary. We teach them how to find the present moment.
The body's been conditioned to be like an animal that's in survival, but when you start working with it & you keep settling it down, you're breaking that conditioning response & you're telling it, it's no longer the mind of anger, that you're the mind. In the beginning, it takes a lot of effort and a lot of energy.
We have so many brain scans to show so many people healing from anxiety and depression. You can't be anxious, depressed if you're in the present moment. The body is going to want to hold onto that emotion, but if you keep working with it, it's going to surrender to another mind & when that happens, there's a liberation of energy🧠✨ ⠀⠀⠀⠀⠀⠀
