Faith · Fear · joy · parenting · pregnancy · Prenatal Diagnosis

Running out of the darkness: How a song about Jesus reminded me of who I am

Even knowing Jesus as a child, and growing a relationship with God as an adult... when tragedy and uncertainty strike, surrender boot camp begins. Tuning into this type of surrender changed me. .... letting go, and leaning in. ... this has transformed the way I feel into all experiences, relationships, interactions, how I raise my… Continue reading Running out of the darkness: How a song about Jesus reminded me of who I am

joy · Prenatal Diagnosis

Orange Socks: Inspiring Life Despite a Diagnosis

Last weekend, our family was interviewed by the President of Orange Socks, and we couldn't be more grateful for the opportunity to share our story. March 1, 2017, we went in for a routine ultrasound appointment, the 20 week anatomy scan. After 45 minutes of checking measurements, the ultrasound technician said, "I need to call… Continue reading Orange Socks: Inspiring Life Despite a Diagnosis

Christmas

Baby’s 2nd Christmas: A Meaningful Milestone

This holiday will be filled with lights, glitter, colors, festivities, gathering, love and celebration... ... not without moments of worry, but with just a little less than ever before... ... a time to remember those who have passed, and to also remember just how far... we have come... This Christmas, I will feel just a… Continue reading Baby’s 2nd Christmas: A Meaningful Milestone

Niko Gian

October is Dwarfism Awareness Month

"I think he has a form of Dwarfism." This was the moment it all started getting blurry for me. During our follow up ultrasound, at 20 weeks pregnant, our doctor said these words to us. Shock, confusion, curiosity and denial flooded waves over us. I wondered how anyone could tell with such certainty that this… Continue reading October is Dwarfism Awareness Month

Children · Faith · Family · joy · Niko Gian · Uncategorized

Big Milestone for Niko

No one ever said he wouldn't walk.... No one ever said he wouldn't crawl. Most have said, "We don't know." The only thing scarier than the unknown... .... scarier than the not-knowing of how a future will play out... ... how our son's life will unfold.... .... whether he will live a full and purposeful… Continue reading Big Milestone for Niko

Children · Faith · Family · joy · love · Niko Gian

Niko is almost 1 + 6th infusion

Niko will be 1 next week! Can you believe it!? 26 fractures at birth 13 hours of labor for mom 6 IV infusions 5 days in the NICU 4 prenatal ultrasounds  3 siblings who adore him 2 parents who are beside themselves with his presence 1 big birthday boy + 923 miles to Omaha and… Continue reading Niko is almost 1 + 6th infusion

Faith · Fear · love · Marianne Williamson · spirituality

What’s light got to do, got to do with it?

“Our deepest fear is not that we are inadequate. Our deepest fear is that we are powerful beyond measure. It is our light, not our darkness that most frightens us. We ask ourselves, Who am I to be brilliant, gorgeous, talented, fabulous? Actually, who are you not to be? You are a child of God. Your playing… Continue reading What’s light got to do, got to do with it?