Osteogenesis Imperfecta · Prenatal Diagnosis

Why it is inappropriate, unethical and negligent to diagnose a baby in utero with a lethal form of Osteogenesis Imperfecta (OI)

  With the expansion of prenatal genetic testing, must come the expansion of dialogue as it relates to the ethical ramifications of prenatal diagnosis. I am not a medical professional, nor a genetic specialist. I am the parent of a child with Osteogenesis Imperfecta (OI), a rare genetic condition. I am a woman and patient… Continue reading Why it is inappropriate, unethical and negligent to diagnose a baby in utero with a lethal form of Osteogenesis Imperfecta (OI)

Faith · Fear · joy · parenting · pregnancy · Prenatal Diagnosis

Running out of the darkness: How a song about Jesus reminded me of who I am

Even knowing Jesus as a child, and growing a relationship with God as an adult... when tragedy and uncertainty strike, surrender boot camp begins. Tuning into this type of surrender changed me. .... letting go, and leaning in. ... this has transformed the way I feel into all experiences, relationships, interactions, how I raise my… Continue reading Running out of the darkness: How a song about Jesus reminded me of who I am

joy · Prenatal Diagnosis

Orange Socks: Inspiring Life Despite a Diagnosis

Last weekend, our family was interviewed by the President of Orange Socks, and we couldn't be more grateful for the opportunity to share our story. March 1, 2017, we went in for a routine ultrasound appointment, the 20 week anatomy scan. After 45 minutes of checking measurements, the ultrasound technician said, "I need to call… Continue reading Orange Socks: Inspiring Life Despite a Diagnosis