Advocacy · Occupational therapy · Osteogenesis Imperfecta

Lecture for University of Pittsburgh students on parent experience related to prenatal diagnosis

This summer I gave a virtual lecture for University of Pittsburgh students in the School of Health and Rehabilitation Sciences PA program - section on genetics. This presentation addresses my personal experiences, pre and post natal, as well as the use of lethal language as it relates to inaccurate information and directive care. Call it… Continue reading Lecture for University of Pittsburgh students on parent experience related to prenatal diagnosis

Advocacy · Occupational therapy · Osteogenesis Imperfecta · Speaking

Keynote Speaker : University of Pittsburgh Health and Rehabilitation Sciences Recognition Day Ceremony

December 14, 2019, I had the honor and privilege of presenting as the Keynote Speaker for the University of Pittsburgh's Health and Rehabilitation Sciences Fall Recognition Day Ceremony, representing both the OI community and Clarion University. The majority of graduates were from the Physicans Assistant program, and others were from Speech Pathology, OT, PT, Audiology,… Continue reading Keynote Speaker : University of Pittsburgh Health and Rehabilitation Sciences Recognition Day Ceremony

Niko Gian · Occupational therapy · Osteogenesis Imperfecta

9 Things I’d Love to Share with Occupational Therapy Students

I recently spoke on a parents panel at a local university, speaking to students in an OT program about working with an OT and having a child with special needs. I'd like to share the following, as it pertains to┬ápediatric occupational therapy. The Early Intervention (EI) program and our team of therapists have changed our… Continue reading 9 Things I’d Love to Share with Occupational Therapy Students

Children · Christmas · Faith · Family · Holidays · Niko Gian

Niko’s first Christmas already and his first mama’s birthday

Every week we meet with PT and OT, it seems Niko is doing something he hasn't done before... whether it be using his arm just a little more, reaching just a little higher, straightening his legs just a little more... his subtle changes grow until they are just part of the normal. Niko started grabbing… Continue reading Niko’s first Christmas already and his first mama’s birthday