16 great toys that have served Niko well in his first 16 months! PT and OT approved.
Category: Children
Big Milestone
No one ever said he wouldn't walk.... No one ever said he wouldn't crawl. Most have said, "We don't know." The only thing scarier than the unknown... .... scarier than the not-knowing of how a future will play out... ... how our son's life will unfold.... .... whether he will live a full and purposeful… Continue reading Big Milestone
Niko is almost 1 + 6th infusion
Niko will be 1 next week! Can you believe it!? 26 fractures at birth 13 hours of labor for mom 6 IV infusions 5 days in the NICU 4 prenatal ultrasounds 3 siblings who adore him 2 parents who are beside themselves with his presence 1 big birthday boy + 923 miles to Omaha and… Continue reading Niko is almost 1 + 6th infusion
Niko grows strong
{New blog} Niko grows strong and continues to show us physical strength and a joyful spirit that is unbreakable!
Niko’s first Christmas already and his first mama’s birthday
Every week we meet with PT and OT, it seems Niko is doing something he hasn't done before... whether it be using his arm just a little more, reaching just a little higher, straightening his legs just a little more... his subtle changes grow until they are just part of the normal. Niko started grabbing… Continue reading Niko’s first Christmas already and his first mama’s birthday
Brave and strong: Niko grows, 3 months and another Pamidronate infusion
Niko's 3rd and 4th months are filled with his first Hallowed, his second Pamidronate treatment and his first Thanksgiving! Although in a whirlwind of moving, kids, holidays, and all things OI, I start to welcome normalcy... our "new" normal.
Worry Less
My future self talks to me all the time and this is what she says: Worry less Read my blog post titled: "How to relieve our worry" In it I quote Dr. Joe Dispenza, who reminds us of this: “The hormones of stress cause us to select the worst-case scenario in some future and begin… Continue reading Worry Less
Prayers for my daughter
My daughter is growing up. And I am thrilled about it. She is moving through these experiences and I am fumbling alongside her... sometimes ahead of her, sometimes behind her. We know how important we are to our daughters. We know they learn about life through us. And yet, we must surrender this importance and recognize… Continue reading Prayers for my daughter
The Re-Frame Game: How to change your language to increase a positive experience
When you change your point of view, you're giving yourself the opportunity to see a different side of the same object. The same place, person or situation, can look completely different, depending upon where you are standing. The Re-Frame Game To re-frame something is to change your language surrounding. It's to re-word it so it's… Continue reading The Re-Frame Game: How to change your language to increase a positive experience
Peace be with you + why we ask for too little
"When Jesus came back from the dead, and appeared to the Disciples... he could have been angry with them. On the day of his death, they ran away....afraid. They abandoned him. Do you know what he said to them, when he returned? "Peace." And it was so important, he said it again. "Peace be with… Continue reading Peace be with you + why we ask for too little
Diagnosis during pregnancy 