Niko will be 1 next week! Can you believe it!? 26 fractures at birth 13 hours of labor for mom 6 IV infusions 5 days in the NICU 4 prenatal ultrasounds 3 siblings who adore him 2 parents who are beside themselves with his presence 1 big birthday boy + 923 miles to Omaha and …
At 7 months pregnant, with a baby boy whose life doctors would not predict, I heard God's voice loud and clear.
I never knew what a Nuk brush was until I learned it from Niko. Our occupational therapist introduced it to us when we started building Niko's tongue muscles. We started with stroking motions of the sides of his mouth and now he chews it independently. Since Niko was born with a broken arm, his left …
{New blog} Niko grows strong and continues to show us physical strength and a joyful spirit that is unbreakable!
Every week we meet with PT and OT, it seems Niko is doing something he hasn't done before... whether it be using his arm just a little more, reaching just a little higher, straightening his legs just a little more... his subtle changes grow until they are just part of the normal. Niko started grabbing …
Continue reading Niko’s first Christmas already and his first mama’s birthday
Niko's 3rd and 4th months are filled with his first Hallowed, his second Pamidronate treatment and his first Thanksgiving! Although in a whirlwind of moving, kids, holidays, and all things OI, I start to welcome normalcy... our "new" normal.
In Niko's first 2 months of life, he had his first surgery and his first Pamidronate infusion! This is a treatment for Osteogenesis Imperfecta, and Niko will get it for as long as he is growing.
