Why it is inappropriate, unethical and negligent to diagnose a baby in utero with a lethal form of Osteogenesis Imperfecta (OI)

July 7, 2019January 26, 2020 Nikki Watson2 Comments

With the expansion of prenatal genetic testing, must come the expansion of dialogue as it relates to the ethical ramifications of prenatal diagnosis. I am not a medical professional, nor a genetic specialist. I am the parent of a child with Osteogenesis Imperfecta (OI), a rare genetic condition. I am a woman and patient… Continue reading Why it is inappropriate, unethical and negligent to diagnose a baby in utero with a lethal form of Osteogenesis Imperfecta (OI)

Christmas

Baby’s 2nd Christmas: A Meaningful Milestone

December 20, 2018December 20, 2018 Nikki WatsonLeave a comment

This holiday will be filled with lights, glitter, colors, festivities, gathering, love and celebration... ... not without moments of worry, but with just a little less than ever before... ... a time to remember those who have passed, and to also remember just how far... we have come... This Christmas, I will feel just a… Continue reading Baby’s 2nd Christmas: A Meaningful Milestone

Children · Niko Gian · Uncategorized

Developmental Toy Gift Guide for a Baby You Love: 16 ideas for the first year+

November 30, 2018December 1, 2018 Nikki Watson1 Comment

16 great toys that have served Niko well in his first 16 months! PT and OT approved.

Children · Faith · Family · joy · Niko Gian · Uncategorized

Big Milestone

October 17, 2018March 25, 2021 Nikki Watson2 Comments

No one ever said he wouldn't walk.... No one ever said he wouldn't crawl. Most have said, "We don't know." The only thing scarier than the unknown... .... scarier than the not-knowing of how a future will play out... ... how our son's life will unfold.... .... whether he will live a full and purposeful… Continue reading Big Milestone

Children · Faith · Family · joy · love · Niko Gian

Niko is almost 1 + 6th infusion

July 7, 2018July 7, 2018 Nikki WatsonLeave a comment

Niko will be 1 next week! Can you believe it!? 26 fractures at birth 13 hours of labor for mom 6 IV infusions 5 days in the NICU 4 prenatal ultrasounds 3 siblings who adore him 2 parents who are beside themselves with his presence 1 big birthday boy + 923 miles to Omaha and… Continue reading Niko is almost 1 + 6th infusion

Children · Faith · Family · love · Niko Gian

Niko grows strong

April 2, 2018April 2, 2018 Nikki WatsonLeave a comment

{New blog} Niko grows strong and continues to show us physical strength and a joyful spirit that is unbreakable!

Children · Faith · Family · Holidays · Niko Gian

Brave and strong: Niko grows, 3 months and another Pamidronate infusion

March 15, 2018March 16, 2018 Nikki Watson1 Comment

Niko's 3rd and 4th months are filled with his first Hallowed, his second Pamidronate treatment and his first Thanksgiving! Although in a whirlwind of moving, kids, holidays, and all things OI, I start to welcome normalcy... our "new" normal.