At 7 months pregnant, with a baby boy whose life doctors would not predict, I heard God's voice loud and clear.
Tag: genetic disease
Niko and the Nuk brush
I never knew what a Nuk brush was until I learned it from Niko. Our occupational therapist introduced it to us when we started building Niko's tongue muscles. We started with stroking motions of the sides of his mouth and now he chews it independently. Since Niko was born with a broken arm, his left …
Niko’s 2nd month and his 1st Pamidronate Infusion!
In Niko's first 2 months of life, he had his first surgery and his first Pamidronate infusion! This is a treatment for Osteogenesis Imperfecta, and Niko will get it for as long as he is growing.
