I’m proud to have partnered with the OI Foundation in presenting this document for families and medical providers.
“Congratulations on your new baby and welcome to the OI family!
The Osteogenesis Imperfecta Foundation is pleased to offer Newly Diagnosed:
A Tool Kit for Parents to help you navigate the many questions you may have
during this exciting, but sometimes stressful, time.
Our mission is to improve the quality of life for those living with osteogenesis
imperfecta through research, education, awareness, and mutual support.
We hope you find this tool kit a helpful resource.
Through this tool kit and our online resources, the OI Foundation provides the
most up-to-date information possible, whether you are building your prenatal
and pediatric care teams, navigating the neonatal intensive care unit or looking
for information on what to expect when you take your baby home. We have also
included a section that can be given to your physician if they are not familiar
with Osteogenesis Imperfecta.
The OI Foundation is a resource for you and your child as he or she grows.
We have built a website you can trust with medically verified information.
We also encourage you to connect with others facing OI for support and to
learn the latest on the condition, whether through our social media presences
or in-person at our regional and national conferences.
Lastly, we can provide information on physicians in your area that have
experience working with people with OI. All you need to do is contact us.
Again, congratulations! We are so happy to be here for you and your family.”
Best,
Tracy Hart
Chief Executive Officer
Osteogenesis Imperfecta Foundation
Diagnosis during pregnancy 