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Diagnosis during pregnancy

The demise of the 20-week anatomy scan, disability bias, an abelist authority + HELP OUR CHILDREN GROW STRONG

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Tag: infant with Osteogenesis Imperfecta

Niko and the Nuk brush
Niko Gian · Uncategorized

Niko and the Nuk brush

April 3, 2018April 3, 2018 Nikki WatsonLeave a comment

I never knew what a Nuk brush was until I learned it from Niko. Our occupational therapist introduced it to us when we started building Niko's tongue muscles. We started with stroking motions of the sides of his mouth and now he chews it independently. Since Niko was born with a broken arm, his left… Continue reading Niko and the Nuk brush

Brave and strong: Niko grows, 3 months and another Pamidronate infusion
Children · Faith · Family · Holidays · Niko Gian

Brave and strong: Niko grows, 3 months and another Pamidronate infusion

March 15, 2018March 16, 2018 Nikki Watson1 Comment

Niko's 3rd and 4th months are filled with his first Hallowed, his second Pamidronate treatment and his first Thanksgiving! Although in a whirlwind of moving, kids, holidays, and all things OI, I start to welcome normalcy... our "new" normal.

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PODCAST: Listen now to our Orange Socks interview!!

https://nikkiwatsonmedia.files.wordpress.com/2019/04/audio-orange-socks-interview.mp3
https://www.youtube.com/watch?v=KeIOkdIdpD4#action=share

Cesarean is NOT associated with decreased at-birth fracture risk

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  • Lecture for University of Pittsburgh students on parent experience related to prenatal diagnosis
  • Coming together
  • Osteogenesis Imperfecta: New Diagnosis Toolkit
  • Prenatal diagnosis + global pandemic
  • Transitions, grief and the wisdom of anxiety

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